Friday, April 5, 2013

outset. the non-comfort of not fitting the profile.

Good morning, dear readers.

Two weeks from this moment, with a days worth of jello in me and my skin coated in a light antiseptic wash, i will be getting my sleep in preparation for a surgery to remove the whole of my inner female components and the malicious entity that has been in silent occupation of my uterus, for who knows how long - or how short - a time.

My enthusiasm for allopathic medicine is qualified at best, flimsy at worst.  I think allopathy's special gift is what it brings to the abrupt - the extreme, the emergencies of life, and i feel often grateful for that.  But other than that i prefer the view of the body as self-sustaining given the essentials.  I wish i had the luxury of time enough to try to healthy this alien away - to turn to roots, to greens - to potent fungi and pure foods and fresh air - to reverse its mood.  To talk it off of its tantrum.   But the situation has been assessed by all kinds of commenters as, in fact, going emergent.

I was delivered the news of this uterine lurker only ten days ago.  I had had maybe 90 minutes to brace myself for the news - because any nurse knows that if you have a biopsy pending, and are called to come in to the clinic, your life is probably on the verge of a massively uncomfortable shift.

Sparing you some minor details - two weeks ago my doctor agreed to see me for menstrual symptoms that were starting to seem more bothersome than what i'd been told to expect from 'perimenopause'.
The next wednesday i scheduled a GYN appointment for my lunch break on evening shift.  I mean, why go near my place of work on my copious off-time if it isn't absolutely necessary, right?  Thanks to our union, my 10-hour shift promises a 70-minute lunch, plenty of time for my first endometrial biopsy.

Exactly.  So after the shattering trauma of having the darkness my unsuspecting nulliparous [nun's] womb pierced by the spinning twizzler of a medical probe i returned to the nursing unit in fully functionless basketcase condition and my compassionate charge nurse got me sent home asap.  The GYN and i both assumed the results would be routine - phone call in a week, no problem.

My GYN doc entered the clinic room and told me, "ellen, i read your path report and reread it again, i just could not believe it was true - because you don't fit the profile at all... You Have uterine cancer...and we have to address it."

The sun was out that day, and it was nearly warm out, so after an hourlong, remorselessly life-altering download in that clinic room i made my way to the grass yard, sat readily on the earth, and made a number of very painful phone calls.  An angelic nurse friend showed up from her day off to find me and to stay with me until 6 pm when i was strapped to the CT bed with my arms raised and my IV flash-pumped the terrible dye into my bloodstream flushing all points tender with a intensely foriegn metallic warmth.  I burst into tears and followed instructions as i was passed through that monolithic ring, giving me orders for when to breathe, when to hold.

The next afternoon another angelic nurse friend came with me for the nearly three-hour consult with my future surgeon.  We were both impressed.  She comes across as just the mix of humanness, competence and humility you'd want in a surgeon.   I was given 6 days to decide between an old-fashioned and a robotically assisted vaginal laparascopic hysterectomy.   I took on all the available time and as many opinions as i could, and went with the bot-assist.

I cannot imagine that anyone is still reading this harrowing tale, and i may wind up taking this down at anytime, as i question my reasons for recording this story.  Ostensibly this blog serves the purpose of keeping informed those who want to be informed of what is transpiring in my medical life and my soul.  This does in fact constitute my first public writing/self-publishing stint ever.  I hope it gets lighter soon. And better soon.  I haven't stopped laughter in real time, though i doubt you'd deduce that from reading what is here.

I will leave writing about the emotions and such around this until later.   But about that i will say one thing.  I have been as shocked by the depth of despair that has arisen as i have been by the depth of the calm.

I don't plan to be nearly as graphic as i could, as least not now.  And for what it's worth i don't care for capitalizing 'i' if it is not at the start of a sentence.  Hope you can manage.

As for FACTS:

The alien is a 5cm adenocarcinoma grade 2 to 3, contained in the uterus.  CAT scan shows no visible mets.   Pain, especially at night, has been an issue ever since the biopsy invaded its lair.  A pending second pathology has been pressed into existence by the clinical advocate MD i have retained.  She is looking for any possible sound arguments for sparing my ovaries.  It may be a longshot but why not try?  As for after surgery, my chances of dodging chemo have been described by a distant third opinion as 'likely' with chances of missing out on radiation - not so much.  Everything of that ilk is contingent on the microcontents and structure of whatever is gently coaxed from my body two weeks hence.

Goodnight.  Please don't encourage me to stay up this late in the future.

OM. peace&love





7 comments:

  1. Dear Hari,
    Sad to know this. We will pray for your speedy recovery and good health.

    Om Namah Shivaya

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  2. ellen bravo! please keep sharing whenever you feel the impulse; you're a funny writer who's made me smile, [feeling guilty], because you'e taken your panic and shock and very real, very intensely profound moments of calm and terror, and told it like only you can. it's def. ellen talking. which is a wonderful thing! you write so well, you are funny. and wise. keep sharing. your spirit, your obvious terror (!!) and obvious joy and appreciation for all things simultaneously...is aive and well!. and yes, i think we can handle your lower case i's....... love laur

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  3. I had this surgery, for excess bleeding from fibroids and I am praying for your speedy recovery. I also have a blog, about menopause and my experiences with wheatgrass, which I stopped after the surgery to recover. I am going back to it now. My surgery went well and my recovery is complete; I hope yours is successful as well.

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  4. Keep writing the blog! A friend of mine went through this a few years ago and kept us all informed through her blog. She's doing great now, thankfully! Your writing is very cool, you should be an author, have you considered that?

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    1. This unknown person has a very good point - you really do have talent as a writer - you've got 'a voice!' and it's really quite witty, friendly and you-knee-Q, something that can't be 'imitated'. Maybe now is not the moment to mention this, but hey...let's project a future in which you are a writer! :-) I'm glad to hear from so many commenters that they've had this surgery and recovered completely...Sending Lots of Love to you, Hari Priya!

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  5. Hey ellen, wow, really sorry that you're going through this. Life is funny, in a dark way sometimes. Like you 'not fitting the profle." I am glad that you have a good medical team around you from the sound of it.

    For me, I like to hear all the nitty gritty details... probably imposible to be too graphic for someone like me. :-)

    Keep posting and just breathe! Ahh!

    Sending you lots of love and light,

    Courtney in tucson

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  6. HP!!!! OMG I wish I was aware of this when I took so lightly to your email address requests on FB! :( I cannot truly say that I know how you are feeling but cancer I do know, and the fear, confusion, and every other possible emotion that comes with it is something very familiar. I also "Didn't fit the profile". I have no idea why these things happen - from a scientific point it all makes sense that every now and then somebody's cells are going to go rogue and decide they want to be different to all the other cells. But, it can also be life changing in a positive way - so much changed in my life for the better as far as me as a person is concerned. Things, that I am sure I could never done myself without being shown how precious this time is. All you have to do is stay strong and positive - it can be very hard, I know - but you will get through and there is a totally amazing you waiting at the other side. You are not 'alone' and never will be. Never hesitate to message me ANYTIME, even just to have a vent. You have always been there for me for a good laugh or a 4am cup of tea and dnm, and I hope I can some time return the favour for you. - Vani

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